Resources

Autism Support Group

Autism support groups are, very basically, a group of parents (or grandparents, aunts, uncles, siblings, foster parents -- anyone who is raising the child), primary caretakers, and sometimes other family members who are concerned with disability issues. Some autism support groups also include members who are not parents of children with disabilities, such as educators, medical professionals, social services people, policymakers, and others interested in the same issues. For the purposes of this discussion, the term autism support group will be used for all groups serving the needs of families of someone with a disability, however diverse their membership may be.
There are many ways in which parents, as a group, can help each other. For example, autism support groups can provide parents with information on medical or educational services, programs, and other resources available within the community, county, state, or nation. The group can invite speakers who are experts on a wide variety of topics to speak at their meetings or produce a newsletter concerning local services, events, school policy, and state policy. This information is invaluable for "new families" who have just learned of their child's disability and continues to be useful to families as their needs change through the years.

Within the group, parents can also be open about their fears and concerns. There is a great benefit in learning that there are other families going through the same kinds of situations. Families join autism support groups to end the sense of isolation their unique situation can create. Often, families in atypical situations find that traditional sources of help are unable to understand their particular needs or to help them solve problems. By expressing their concerns and problems to other parents, families can get reactions and advice from others who may have experienced similar situations or needs. They can share the daily coping techniques that help keep families together, as well as tips that can make life run more smoothly. Parents can help each other to renew their spirit, determination, and enthusiasm for life. Being able to discuss concerns with others in the same situation can bring about realistic, pragmatic solutions and is often exactly the support families need.

Autism support groups also serve other important needs and offer several advantages. For example, as a group, parents can form a united voice like any other special interest group. In this united voice, they can then present their concerns to school administrators and community leaders.